Delayed diagnoses, dismissals common in endometriosis care
A systematic review has found that individuals with endometriosis frequently face delayed diagnoses, mismanagement and emotional distress due to systemic shortcomings in primary care. The review, published by researchers at the University of Nottingham, analyzed 37 international qualitative studies and identified widespread patterns of dismissal, fragmented care and prolonged suffering.
Participants, ranging in age from 12 to 78, commonly reported experiencing severe menstrual pain and abnormal bleeding during adolescence. However, these symptoms were often minimized by both family members and primary care providers, who characterized them as normal aspects of menstruation. Initial treatments provided only temporary relief, and many patients expressed confusion about the rationale for these interventions.
Misdiagnosis was a recurring issue, with endometriosis often mistaken for gastrointestinal or psychological conditions. Some patients reported being advised to get pregnant or undergo hysterectomy, which are options not supported by current clinical evidence. On average, the delay between initial consultation and referral to a specialist was 36 months.
Referral barriers and “doctor shopping” were frequently cited, with some patients saying they had to educate their physicians about endometriosis. The emotional toll was significant, with many doubting their own perceptions of pain and avoiding further medical care.
The review called for improved education among primary care physicians, more consistent referral pathways and greater access to gynecological care to address these long-standing gaps.
Read more: Conexiant
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